On June 12, 2007 our third beautiful child Henry Theodore Haag was born. Soon after he turned 2 we learned that he had a Neurofibromatosis (NF). NF is the term for a set of distinct genetic disorders characterized by their tendencies to cause multiple, benign (non-cancerous) tumors to grow on nerves. Henry is currently undergoing Chemotherapy for a brain tumor we discovered in February of 2011.
Thursday, March 31, 2011
June 2010
The MRI in May showed us a few things. Henry had an optic glioma on his left optical nerve. This is a tumor that can cause blindness. It also revealed that his growth plate on his right fibula had stopped growing. This was the main reason for him not being able to walk and we told that we needed to do surgery to correct this bone deformity. Bone deformity's are very common with kids that have NF.
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